The National Organization for Rare Disorders (NORD)
has come a long way from its humble beginnings yet there is still a long way to
go in its fight against rare disorders. From its informal coalition consisting
of support groups, the American non-profit organization has made and continues
to make significant advancements in its advocacy.
One of its early, and most
notable, successes is the passage of the Orphan Drug Act by the United States
Congress in 1983. The act facilitates the research, development and
commercialization of orphan drugs (i.e., drugs used in the treatment of rare
diseases).
Today, NORD provides for monetary
and non-monetary support in a wide range of causes related to rare diseases.
The support includes funding for research and development of treatments and
cures for rare diseases; assisting individuals diagnosed with rare diseases and
their families; and lobbying for relevant legislation.
Private individuals, public
agencies and corporate entities can do their share in assisting NORD toward the
achievement of its goals via donations and grants. Do your share today and help
your fellowmen become better.