The Tuberous Sclerosis Alliance is a non-profit organization that helps people suffering from Tuberous Sclerosis Complex or TSC. Their main goal is to help find a cure for TSC and to help improve the lives of those who are suffering because of this disease.

Tuberous Sclerosis Complex is a disease that affects almost a million people all over the world. In the United States alone, it is estimated that there are 50,000 people living with this disease. The numbers may not be as large as many other debilitating chronic diseases; however, with at least two children born with the disease each day, Tuberous Sclerosis isn’t something people should ignore.

TSC is a generic disease that causes non-malignant tumors to form in one’s organs. Most of the time, these tumors grow in the eyes, brain, kidney, skin, heart, and lungs. In many cases, patients with TSC are able to lead normal, happy lives, but there are those who experience seizures, intellectual disability, autism, and developmental delay because of the tumors forming in their brain. Arrhythmia is also a big problem for those who have developed a heart tumor because of TSC.

The Tuberous Sclerosis Alliance was founded by four mothers in 1974. Originally called the National Tuberous Sclerosis Association, the organization has invested a lot of time and money in identifying the genes that cause TSC and working with families affected with TSC to help them improve the lives of their loved ones afflicted with the disease. The organization officially changed its name to the Tuberous Sclerosis Alliance in 2000 to reflect its commitment to working with other TSC-oriented organizations to raise funds for research projects to find a cure for the disease as well as treatments to help alleviate the plight of those affected.  The Tuberous Sclerosis Alliance celebrated its 40th anniversary in 2014 and continues in its efforts to help people with TSC.