Marfan syndrome is a serious genetic condition which, at times, can be
life threatening depending on which part of the body is affected. Early
diagnosis is key to saving the life of a person with a life-threatening form of
this condition. Unfortunately, many people do not know that this condition
exists and don’t know what to look for. If the symptoms come out later in life,
this may put the life of the person with Marfan syndrome in danger. Statistics
show that 1 in every 5,000 people has this genetic disorder and it crosses the
boundaries of gender and race.
The Marfan Foundation aims to help
the people afflicted with this condition by pursuing research projects that
could help in the early diagnosis and treatment of the condition and making
sure that the project is properly funded. They also aim to educate as many
people as they can about the condition and provide support to patients and to
the families of those with Marfan syndrome.